Tarra was very helpful in sorting out the problem I had as I could access my mother’s account, but not mine. The problem was identified and Tarra advised on what I had to do. The problem was rectifi... Toon meer
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If you receive an invitation from PatientsKnowBest asking you to sign in for their services, my advice would be not to bother. You will be ripping your hair out in five minutes flat. The registration... Toon meer
They continualy send me appointments that are of the incorrect times mostly at night because for some reason my address was in Brisbane and not in Brighton UK so the appointments are wrong. I have go... Toon meer
I had problems signing in and reached out to Patients Know Best Support. They were very quick in responding and provided easy to follow steps enabling me to access my info. A super team in my opinio... Toon meer
Bedrijf heeft geantwoord
Bedrijfsgegevens
Informatie afkomstig van verschillende externe bronnen
Patients Know Best (PKB) is Europe’s largest personal health record platform, enabling patients and healthcare professionals to access real-time health information - anytime, anywhere. As the world’s first patient-controlled personal health records system, PKB facilitates borderless, integrated care wherever the patient needs it. That means any healthcare provider, whether in another area of the country or another part of the world, can immediately access all the information they need to support improved clinical decision making and the best patient care. Everything from test results, care plans, real-time monitoring data and discharge summaries, to the patient’s own data - either uploaded from their journal, wearable devices or using symptom tracking, are all available in one patient record. This also reduces the need for professionals to request background information from the patient’s regular healthcare team. In 2020, PKB became the first personal health record (PHR) to integrate with England’s national health platform - the NHS App. This extends the NHS App’s current features and sharing of GP data, to allow patients to access PKB’s full health and care record and functionality, direct from the national NHS interface. For more information on the features and benefits of Patients Know Best, visit www.patientsknowbest.com or email enquiries@patientsknowbest.com.
Contactgegevens
Cowley Road, CB4 0WS, Cambridge, Verenigd Koninkrijk
- help@patientsknowbest.com
- www.patientsknowbest.com
3,5
Gemiddeld
671 reviews
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Heeft 54% van zijn negatieve reviews beantwoord
Reageert doorgaans pas na meer dan 1 maand
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This is the perfect way for all my…
This is the perfect way for all my medical records to be made available to me and the clinical team looking after me. The sooner it is rolled out across the whole of NHS Wales the better for everyone
2 februari 2026
Review zonder uitnodiging
Antwoord van Patients Know Best
Thank you for taking the time to share a review 😊
It’s great to hear PKB is helping you and your clinical team. As a Welsh patient myself, I completely agree, it will be fantastic to see it more widely available across Wales 🏴
Best wishes,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Confusing and verbose
I get emails that are saying your records has been updated but please read any paper letters you get. I then find that an appointment has been cancelled ( with no notification). I get a new appointment at a different place but no clariry as to what either appointment is about.
And the name - "Patients Know Best" is pathetic. If they did why would I see a doctor ffs?
15 januari 2026
Review zonder uitnodiging
Antwoord van Patients Know Best
Hi Bill, I understand why this has left you feeling frustrated.
Just to clarify, PKB provides the platform where your records are shared, but we're not in control of the clinical content or how and when teams choose to update patients about appointments. That being said, we very much hope your information is clear and accessible on our platform, but if something isn’t right, our technical support team are here to help. We can also guide you to the right team at your hospital, to support with your clinical concerns.
As for the name, we’re not claiming that patients know medicine better than clinicians. It reflects our mission of empowerment; everyone benefits when patients are informed, involved, and active partners in managing their health, rather than passive recipients of care. That means having access to a copy of their health record, understanding what it means, and using that insight to take part in shared decisions with carers and healthcare professionals.
Please get in touch with our support team via email on help@patientsknowbest.com, quoting the word 'Trustpilot' in the subject.
Best wishes,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
IT Dept Were Great !
For my recent minor case all communications and my treatment went perfectly. I could not be happier. Then I get a tricky IT glitch and you would think it would take forever (or never) to sort out but..….it was fixed really quickly and Peaches / IT dept were incredibly helpful. Clear proof to all the complainers that there is good work going on behind the scenes!
8 januari 2026
Review zonder uitnodiging
Antwoord van Patients Know Best
What a lovely review, thank you Jason! I’m glad everything was sorted for you quickly, and I'll be sure to pass your kind words on to Peaches and the team.
Take care and best wishes,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Got the job done
I have been going to many different departments and trusts trying to get details for over four months. I have requested SARs and gone through multiple layers of information request databases… only to receive nothing that is of use.
I eventually got through to peaches at patients knows best, the NHS itself has taken four months to not complete the various requestsAnd still has a waiting list of over nine months.yet peaches somehow managed to get 80% of the information I required in less than three weeks. The only things I don’t have are handwritten records and original ECG results printouts
I would say have your patience nose best IDs securely available somewhere in case you ever become unconscious for a length of time and people can’t access your details properly or if you get brain damage and forgetbecause that’s what happened to me….
6 januari 2026
Review zonder uitnodiging
Antwoord van Patients Know Best
Thank you so much for sharing your experience. I’m really pleased that Peaches was there to help you access the information you needed, to make such a difference after all that time. If you ever need support with your record, we’re here to help.
Take care and best wishes,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Utterly pointless
Utterly pointless:
this app is designed so that stupid nhs trusts can delay, in my case *more than a month* , releasing certain information to patients. This includes a blood test for possible prostate cancer, and simple x rays reports. It’s well known that a month’s delay in starting cancer treatment can mean a 10% reduction in survival, so patients need to get that (PSA) result asap, so they can ask their GP for a retest, to check that any spike is just temporary, not a sign of cancer. Yet PKB facilitates this nonsensical behaviour. And my local trust won’t even tell me who at the Trust makes these stupid, dangerous decisions.
PKB, please publish here who exactly at my Trust, uhsussex, makes these decisions. This trust is just delaying the release of my results to me, and many other patients of my GP, because it can.
Utterly pointless, not least because patients will simply contact their GP and hospital departments to get the results.
The app is called “Patients know best”, not “Trusts know best”
19 december 2025
Review zonder uitnodiging
Antwoord van Patients Know Best
Hi Steven, I wanted to acknowledge this review and note that you contacted our support team directly at the time. I’m really glad you did, as we were able to advise and share the contact details for raising your concerns with the Trust.
Just to clarify: a clinician’s access to your results is never affected by any delay in PKB, it’s a patient-facing restriction only. The requesting clinician receives results from the lab immediately, so there should be no delay to care, diagnosis, or treatment.
PKB’s default approach is to deliver results directly to patients as soon as they’re available, providing immediate access. Where a Trust applies a delay to specific test types, we’re required to respect that and follow their configuration. However, we’ll still notify the patient that a result is ready, even if the value is temporarily hidden. You're then free to follow up with your GP or hospital team, though some results may not be accessible to reception staff until a clinician has reviewed them.
Thank you again for sharing your experience and feedback. We advocate for greater transparency and patient access wherever possible, and we’re always here to support with any technical issues in your record.
Best wishes,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Brilliant service x
Brilliant service, dealt with my issues quickly
2 december 2025
Review zonder uitnodiging
Antwoord van Patients Know Best
Thank you Christine, I’m really glad we could help to get things sorted quickly for you. We really appreciate you taking the time to leave a review!
Lisa
📧: help@patientsknowbest.com
Patients Know Best
I would give it zero stars if I could
I would give it zero stars if I could. There is no way I can ever log in to this thing: there are apparently several ways you get log into the app, but none of them ever works!!! I’m sure someone will now write a lovely,supportive reply to my review, just as they always do to respond to all the bad reviews( of which there are loads!! And none of it will matter anyway, as obviously nothing is ever being done in order to help the app work better!!)
10 december 2025
Review zonder uitnodiging
Antwoord van Patients Know Best
I'm sorry Irena, I can hear how frustrating this has been for you. Login issues are genuinely something we can help with.
PKB has one main login page, where you can sign in using the username and password you set up at registration. Some people choose to link their NHS login as an additional route. Occasionally, NHS login setup can fail if your details match up with more than one record, and that’s something we can absolutely help you to resolve.
If you're already registered but are struggling to reset your password, we'll connect you with the right team to sort that out quickly.
Please email help@patientsknowbest.com with the subject line “Trustpilot”, that way we can make sure it’s picked up promptly by the team.
Best wishes,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Very supportive and professional ional…
Very supportive and professional introduction to CBT. Even though it was my 1st session,I am now more knowledgeable and informed regarding thought processes and behaviour changes. The health care professionals providing CBT are exceptional, professional and kind.Also the insight and support from my fellow patients is invaluable and so productive going forward. Very lucky to be a part of the programme.
8 december 2025
Review zonder uitnodiging
Antwoord van Patients Know Best
Thank you so much for your review, it’s great to hear how positive your experience has been, and we’re really glad PKB could play a part in helping you along the way.
Best wishes,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Share your information between healthcare providers
It was frustrating at first as I had forgotten a Trust in another area had registered me so I got completely confused when 'registering' as the first Trust came up. However, upon making my query clear in contacting the team, they were really helpful and told me where to find their Trust on the portal as currently, the original one shows up on the main page and they can't change it.
It's really important to share your information between providers as one provider may have some information that is relevant/vital to diagnosis/treatment with another provider.
8 december 2025
Review zonder uitnodiging
Antwoord van Patients Know Best
Thank you so much for your review, and for sticking with it despite the initial confusion. I’m really glad the team could help clarify things and guide you to the right place in your PKB record.
We couldn’t agree more with your point about information sharing between providers, we want patients to be able to manage that sharing easily and feel in control, it's exactly what PKB is here to support.
Best wishes,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
50% of my medical information…
50% of my medical information appointments, medication, history, the list goes on.is missing from this site and It’s so difficult to navigate and impossible to get the information you need. I can’t understand why my practice are still using this platform. And it interferes with my NHS platform.
5 november 2025
Review zonder uitnodiging
Antwoord van Patients Know Best
Sorry Nick, I understand feeling frustrated if some of your information isn’t there yet. PKB provides the platform for clinical teams to share health data with their patients; our aim is for every person to have meaningful access to their own record. What currently appears, however, depends on the information that your GP or hospital has chosen to share. Some use our full functionality and share all types of information, while others introduce it in stages.
PKB certainly shouldn't interfere with your NHS services. We're fully integrated with the NHS App and NHS login. If something doesn't seem right, please get in touch at 📧 help@patientsknowbest.com; we’d really like to understand more and help. You may also find it helpful to look through our user guide for tips on navigating your record: manual.patientsknowbest.com
Best wishes,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Awful awful awful you cant get access…
Awful awful awful you cant get access to your records or messages this is set up for your data to be given to anyone with computer knowledge and get your personal information
4 november 2025
Review zonder uitnodiging
Antwoord van Patients Know Best
Hi there,
I’m sorry this has been a frustrating experience.
Your PKB record is protected to NHS-level security standards, and all clinical data is encrypted, both when it is stored and when it is in transit. Only those with permission can see your record, and you can permit or revoke access at any time via the ‘Sharing’ page.
PKB doesn’t sell or share your data, nor allow open access. We're a B Corp and social enterprise, with a mission to give patients access and control over their health record data.
If you've recently registered and there's very little data showing, it’s likely because your teams haven’t started sharing data yet, or they’re releasing data in phases. If you're having trouble accessing your information, or need any support at all, please contact us on the email below. We’re here to help.
Best wishes,
Lisa
📧: help@patientsknowbest.com
Terrible
Terrible. Limited data. Hospital appts not often recorded or letters and outcome or imaging etc.. Compared to “MyChart’ which is outstanding in every way.. why don’t all NHS hospitals use MyChart????? Must be cost is all i can think of.
23 oktober 2025
Review zonder uitnodiging
Antwoord van Patients Know Best
Hi there,
I understand it’s disappointing to log in and find that some information isn’t available. To explain, PKB provides the secure platform, but the information you see depends on what your connected healthcare organisations are sharing at this time. Some providers already share a wide range of data types, while others are taking a more phased approach.
If you’d like, we’d be happy to check whether your local service has plans to release more data types in the near future. We’re here to help.
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Great user experience
Great user experience, really great to have all my data in one place.
11 oktober 2025
Review zonder uitnodiging
Antwoord van Patients Know Best
Hi Emily,
That’s lovely to hear, thank you for taking the time to share your experience! ⭐️
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Absolutely horrible service
Absolutely horrible service. I have not been able to access my important medical records for over a year now. My account has frozen and every attempt to reset fails. I have complained many times to no avail. You cannot call them. This is a complete waste of public money and no-one is held accountable for the appalling service that they provide.
8 oktober 2025
Review zonder uitnodiging
Antwoord van Patients Know Best
Hi Jules,
I’m so sorry to hear you’ve had such trouble. We’d never want to leave someone stranded. I can’t find a support ticket under the name you’ve used here, but please do contact our support desk via help@patientsknowbest.com, we’d really like to assist.
As you're unable to pass the security check for the password reset, the PKB admin team at your local NHS Trust can manually verify your identity and reset your password and security details for you. You can find their contact information on our help pages: support.patientsknowbest.com (search: "contact details for password enquiries").
Alternatively, if you’ve previously accessed your PKB record using NHS login, you can sign in again using those details instead.
Please don’t hesitate to get in touch, we’re here to help you.
Best wishes,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
If I could have given no stars I would…
If I could have given no stars I would have done!!
What an awful idea, who came up with ths crappy system, you cannot find anything that you actually want. There are no obvious ways to get to any of your own test results.
It is truely an awful system!!!
8 oktober 2025
Review zonder uitnodiging
Antwoord van Patients Know Best
Hi Ann,
I'm really sorry to hear you’ve had a frustrating experience. That’s absolutely not how we want patients to feel when using our platform.
PKB is designed for the patient to have real-time access to their health information The test results page is one of the most visited areas on the platform, and we release around 20 million results every month for patients to view.
Your PKB record reflects the data your healthcare providers have chosen to share with you at this time. Some organisations are fully integrated and using all the features PKB offers; others are rolling it out in phases, which can affect what you see and when.
We’d be very happy to guide you through what should be there, where to look, and what to expect. Please send us a message 📧:help@patientsknowbest.com and we’ll do our best to help.
Lisa
Patients Know Best
support.patientsknowbest.com (help desk)
wiki.patientsknowbest.com/space/MAN (user manual)
Our Dr surgery knows nothing about this…
Why do our actual doctors not know about this website? We can already access our info on the NHS app. Isn’t this just another way of spreading our information around and having too much detail out there? What’s wrong with the NHS app
3 oktober 2025
Review zonder uitnodiging
Antwoord van Patients Know Best
Thanks for your feedback. Your GP practice may not be actively using PKB to share data with you at this time, though every patient in England can retrieve their GP data into their PKB record via NHS login. If you received an invitation to register with PKB, it’s likely this came from your hospital or NHS Trust, rather than your GP. You can check which organisations are sharing data with you by visiting the “Sharing” section of your PKB record.
PKB and the NHS App work together, PKB was the first personal health record integrated into the app. In many areas, you can access your PKB record directly from within the NHS App using your secure NHS login, providing a single front door to more than just GP data, including hospital appointments, test results, care plans and more.
Your information is held securely, and only NHS teams involved in your care, or those you choose to share with, are permitted access to it. If you’d like help checking what’s available in your area or how your local teams are using PKB, feel free to contact our support team. We’re happy to help.
Lisa
📧: help@patientsknowbest.com
Patients Know Best
seems a waste of public money
seems a waste of public money, nothing is relevent or up to date, the discuss tab on prescriptions leads you nowhere, unable to discuss anything.
29 september 2025
Review zonder uitnodiging
Antwoord van Patients Know Best
Hi Jean.
Sorry that you're not seeing the information you expect, I completely understand why that would feel disappointing.
Just to explain briefly: PKB provides the secure platform for your health record, but it's your healthcare teams who manage the data shared, and decide which features to utilise. If your record appears to be limited, it usually means data sharing hasn’t been fully set up yet by your provider. For example, you might see clinic letters, while other types of information, like test results, aren’t yet feeding through.
PKB supports secure messaging, so patients can contact their care teams from within their record. However, if this feature hasn't been enabled by your teams, it would explain why you’re unable to start a discussion with them at this time. If there’s something you’d like to see in your record or a feature you wish could be utilised, we recommend informing your care team and/or the local PKB team at your hospital, as patient feedback can influence what services are prioritised.
If you need help finding the right contact details, or if you'd like us to confirm what's currently available in your area, please get in touch with our support team, we're here to help!
Best wishes,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
I received to text from pkb 13/09/2025hem…
I received to text from pkb opened them only to find i have moved from worthing west sussex to croyden 42 miles away i have tried to change the address but not able to, then i tried to login to my account did not recognised my password this is ever time i try to login i have the same password.
This has taken 2 hours to open pkb give your self a big pat on your back for a crap job not well done.
14 september 2025
Review zonder uitnodiging
Antwoord van Patients Know Best
Sorry to hear this, Allan!
If you've previously used NHS login to access your record, this is the quickest way to log back in.
If this is not an option for you, please reset your PKB password. If you're unable to remember your security answers, contact your local PKB team to regain access: https://support.patientsknowbest.com/en/support/solutions/articles/11000130677
In PKB, you can see the personal contact details that your hospitals, GP, and other providers have on file for you. This makes it easy to spot and fix any outdated information with them directly, ensuring your records are always accurate. Any updates you make with your providers will automatically show up in PKB.
To review the organisations connected to your record, please navigate to the sharing section.
For further assistance, please contact our support team, we're here to help!
Best wishes,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
Could not Register with PKB
I was having difficulty registering for PKB. I emailed, and was talked through - via email - what to do. Eventually my wife took over as nothing was working out, daily emails for over a week, until eventually I was able to Register. Many thanks to Peaches Wilkes for her fantastic patience with us, and her knowledge at sorting out the problem!
21 augustus 2025
Review zonder uitnodiging
Antwoord van Patients Know Best
Thank you for sticking with it, John! It’s great to hear that you reached out to our support team, and that Peaches was able to guide you through registration. I’ll make sure your kind words are passed on to her.
Really appreciate you taking the time to leave a review. If you ever need support with your PKB record, please don’t hesitate to get in touch 😊
Lisa
📧 help@patientsknowbest.com
Patients Know Best
Inportant documents that I could not download
I had a very inportant appointment at the hospital they sent me a letter to which I could not download. Which is very frustrating especially as it's to with your health. I could not get into app as it was saying it was wrong password. I filled out a form to get a ticket to complain and get help cancelling the app I did this 3 times and knowone bothers to get back to you. This app is not good and in my opinion it's just another way for the government to make money. I need to someone to contact me and give me instructions to cancel app and delete my personal information to do with my medical history. If not I'm going to my local mp to report this I'm not happy what is point of having if you can never see your medical notes it's useless
18 augustus 2025
Review zonder uitnodiging
Antwoord van Patients Know Best
I’m so sorry for the frustration you’ve had trying to log in, and for the delay in our response.
I believe we’ve replied to your support ticket with step-by-step guidance on how to access your record or reset your password. We've also sent the contact details for the local PKB support team at your hospital, as they can help directly with login issues, record access, and anything that needs verifying.
Please don’t hesitate to get back in touch if you need anything else, we’re here to help.
Best wishes,
Lisa
📧: help@patientsknowbest.com
Patients Know Best
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